My Training Partner

Oliver Dillon, my 17-year old grandson, is my inspiration and my hero.  He is severely disabled.  We do not have a medical diagnosis, but Ollie displays many of the symptoms of Angelman Syndrome.

Ollie is one of five children of my daughter, Amy, and her husband, Simon.  They are wonderful parents, and I am so proud of how they have handled this huge challenge in their lives.  Each of Ollie’s four siblings and his extended family of aunts, uncles, grandparents and cousins treat him like every other member of the family, and he loves being around them.

I have assumed a large role in Ollie’s life, helping him to receive the care and treatment he needs.  He, in turn, has changed my life forever.  He has made me sensitive to the needs of the disabled and our obligation to assimilate them into society and help them realize their full potential.  He has helped me appreciate what is really important in life, with faith, family and friends at the top of the list.  He has made me a better person in ways that are too numerous to describe.  Ollie is the sweetest boy on planet earth, and he and I have a special bond that will never be broken.  Our family gives thanks every day that this little treasure was given to us by God 17 years ago.

Ollie is in a special education school and receives intense physical, occupational and speech therapy at school and from private and public therapy service providers.  His doctors, teachers and therapists are wonderful.  He climbs his own Mt. Everest every day of every week of his life.  I have such enormous respect for his courage and stamina.

In 2009, Ollie started having episodes in which his lips and extremities turn blue, his oxygen saturation levels drop dramatically, he shakes, zones out and then collapses and nearly passes out.  In the third video below, you will see him have one of his episodes.  We admitted him to two hospitals for over 8 weeks, and he was given a battery of tests by doctors in every specialty known to the field of medicine.  Despite all this testing, Ollie was discharged from the hospitals with no diagnosis as to the cause of these episodes and no prescribed medicine to combat their effects. In 2016, the episodes became more intense and long-lasting, so we readmitted Ollie to Children Hospital of Orange County for more testing. Once again, he was discharged with no answers.  In typical Ollie style, he has bravely learned to adapt to his “new normal.”  He never complains.

I am so proud of Ollie and so privileged to be his grandpa.  Despite the frustration at not having answers, we are not giving up.  We will continue to search for a diagnosis so we can find treatment options for Ollie.  Please keep him in your thoughts and prayers.  He means everything to us.

Ollie helps me train for Mt. Everest.  Every Sunday, we take 40-50 mile bicycle trips in the mountains and along the coast.  I pull him in a trailer behind my bike. Since he now weighs over 100 pounds, this Sunday exercise has become quite a workout for me. We love spending this time together.

Ollie is getting pretty big for his bicycle trailer.  So, in September of 2012, I rode to Seattle on my 1998 Harley Davidson Road King Classic and had a sidecar added to the bike for Ollie. Ollie & I take short trips on our bike and sidecar. My plan is to take Ollie on road trips throughout the United States in which we will visit national parks, including the Grand Canyon, Zion, Bryce Canyon, Yosemite, the Grand Teton and Yellowstone.

Here is a video of Ollie’s first ride in the sidecar.



Ollie & Papa at Cook’s Corner, our favorite biker bar

Ollie and I travel a lot, including hiking, bicycling, trips to Disneyland, trips to local parks and amusement centers, and train rides–he loves the motion and movement of trains. In October 2007, Sharon, Ollie and I took a 5-day round trip train ride from Los Angeles to Seattle on the Coast Starlight. We had a great time.

Ollie taking some of his first steps

Ollie taking some of his first steps

 

Ollie & his beloved neurologist

Ollie & his beloved neurologist

Ollie & Ms Elmore, his 7th & 8th grade teacher

Ollie & Ms Elmore, his 7th & 8th grade teacher

IMG_1221 - Version 2

Ollie & Ms Joseph-his 9th grade teacher

Ollie & Ms Vanis, his physical therapist

Ollie & Ms Vanis, his physical therapist

 

Ollie & Elda, his one one-one-ai​de

Ollie & Ms Elda, his one-on-one ai​de

Ollie & his therapists

Ollie & his therapists

IMG_0552

Ollie & his teacher, Beth Snelgrove

Ollie & his teacher

Ollie & his teacher, Bob Appleberry

Ollie & his teacher, Jennifer Atkins

Ollie after completing his safety check on the locomotive

Ollie after completing his safety check on the locomotive

Ollie in his stateroom

Ollie in his stateroom

Ollie with Papa at lunch

Ollie with Papa at lunch

Ollie at dinner with Grammy and Papa

Ollie at dinner with Grammy and Papa

Ollie enjoying the view

Ollie enjoying the view

Ollie with his cousins at the Spaghetti Factory in Seattle

Ollie with his cousins at the Spaghetti Factory in Seattle

Ollie with Grammy and Papa at the Spaghetti Factory in Seattle

Ollie with Grammy and Papa at the Spaghetti Factory in Seattle

Ollie and Papa walking along the wharf in Seattle

Ollie and Papa walking along the wharf in Seattle

Best buddies relaxing in the hotel room in Seattle

Best buddies relaxing in the hotel room in Seattle

Ollie & Papa Win a 5K Race

Ollie & Papa Win a 5K Race

Ollie and Papa bicycling along the Pacific Coast Highway with the sun setting behind Santa Catalina Island

Ollie and Papa bicycling along the Pacific Coast Highway with the sun setting behind Santa Catalina Island

A painting of the above photo that was given to me by my children and their families for my 66th birthday.

A painting of the above photo that was given to me by my children and their families for my 66th birthday.

Ollie and Papa--Christmas 2008.

Ollie and Papa–Christmas 2008.

Disneyland 2010

Disneyland 2010

00000001IMG_1353

Aunt Lori, Ollie & Papa at Cook's Corner

Aunt Lori, Ollie & Papa at Cook’s Corner

Ollie & Papa at Cook's Corner

Ollie & Papa at Cook’s Corner

Ollie & his other Grandpa

Ollie & his other Grandpa

Ollie in the hospital

Ollie in the hospital

Ollie in the hospital

Ollie and Mom

Ollie in the hospital

Ollie and Mom

Thanksgiving025

Ollie & Papa

Ollie & His Sister, Ava, Having Lunch

Ollie & His Sister, Ava, having lunch

Our last bike ride together before my 2014 Everest departure

Our last bike ride together before my 2014 Everest departure

 

IMG_5237

Ollie & Papa at His “Sweet 16” Birthday at Estancia High School-June 16, 2016

IMG_5245

Ollie & His Proud Papa

FullSizeRender

Rafting the Kern River

196A6933

Rafting the Kern River