Deja vu all over again

Dear Family & Friends:

Today, we admitted Ollie to Children’s Hospital of Orange County.  He was here for 7 weeks in late 2009.  The doctors did not feel it was safe for him to travel, so we had no choice but to re-admit him to CHOC.

Once we stabilize Ollie and do further testing, we will resume attempts to admit him for evaluation and testing at Children’s Hospital of Boston.



20 thoughts on “Deja vu all over again

    1. Bill and Sharon, I’m so truly sorry Ollie’s having problems again. I always pray for him each night and will continue to do so. Our love to his parents also. Bob and Sydney

  1. So sorry to hear about Ollie’s admission. Please have them ask to be seen by Dr. Zupanc. She is new to CHOC since 2009 and huge in the neurology world, making huge changes to CHOC neurology department. She see’s my son Parker. You can have them mention Parker’s name or mine if it helps. Prayers to you all during this time. I hope they find answers!!

    1. Thanks Jill. We really appreciate your help and your concern

      I had heard about Dr. Zupanc from another source and mentioned her when Amy, Simon and I admitted Ollie yesterday. She will definitely be seeing Ollie at CHOC.

      God bless Parker and your family.

      To all of you that have been praying for Ollie, our huge thanks. Blessings to all of you.


  2. We are praying for you and your family from here in western Colorado and were deeply saddened to have received this news.

  3. Our God is an awesome God, and He will provide. I will continue to pray for ALL of you. I will follow your blog.

  4. Bill, just wanted to let you know that our family will be keeping Ollie and his entire family in our thoughts and prayers as will the entire Angelman community! {{hugs}} to all of you, especially Ollie!
    Stacie Vetterli ( mom to Zackary ~ 11yrs old, AS del +)
    Elk Grove, CA.

  5. Prayers from the Eastcoast….hoping Ollie can make it this way and obviously praying for Ollie and the entire family!

  6. Bill and Sharon,

    I like to follow your Summit posts, but I am shy about posting comments.

    We have been praying for Ollie and for your whole family. Our whole church prays for you, when I bring Summit concerns to their attention. I am responding today, just to remind you that there are probably a whole lot of us out here, whom you would never know of, that love you and are praying for Ollie. Thanks for keeping us informed.

    It is great that we can cling to the truth that Christ is in control, even when it feels like the circumstance of this life are out of control, and especially out of our control.

    Steve Barke, and your friends for Seaside Presbyterian Church.

  7. Bill, I resonate all the good wishes and prayers everyone has sent for you
    and Ollie. Everyone has covered what I’ve want to say about Ollie’s and
    your ordeal. I don’t know what else to say; other that I’m deeply touched
    with Ollie’s story and struggles with the system. All I know, is God’s plan,
    God’s Speed. Consider yourself and Ollie in my thoughts and prayers.

  8. Bill & Family,

    Along with everyone above, my prayers and confidence in the goodness and power of God are continuing! It seems He has already provided wisdom and insight, now on to treatment and healing. Thank you for keeping us posted, and giving us a chance to pray for you all, esp Ollie.

    Love, Kit & Family

  9. Your postings have reached a wide and varied audience. The networking responses will generate a positive outcome on Ollie’s behalf. Keep posting.

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